Transcript
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Hi everybody, welcome to the Grief to Growth podcast.
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I'm your host, brian, and I'm truly delighted to have you here today.
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Today we have a very special guest.
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His name is Edward Grinnon.
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He's the editor-in-chief of Guidepost publication and is the author of the deeply moving memoir A Journey of Faith A Mother's Alzheimer's, a Son's Love and His Search for Answers.
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Before we get into our conversation with Edward, let me briefly introduce myself to you in case you don't know who I am.
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Again, I'm Brian and I'm here to provide a safe and compassionate space for people that are navigating the journey of grief.
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My own experience with loss started with my daughter passing away eight years ago at the age of 15, her name is Shayna, and that's led me on this path of discovery and understanding about the nature of life and death and all the things that we have to go through.
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So let's get back to Edward.
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Edward's Edward Grinnon again his latest book.
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He shares a deeply personal journey through his mother's illness and his unwavering love and support for her during her Alzheimer's journey.
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It's a touching tribute to his mother, exploring the bond of family and faith, and his testament to the enduring power of love.
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His impressive career spans over two decades, a guide post-publications, where he currently holds a position of editor-in-chief and vice president.
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He's not only a seasoned professional, but he's also a gifted author with several inspirational books to his name, and his upcoming release is A Journey of Faith, and it promises to be a moving and enlightening read.
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So with that, I wanna thank Edward for being here today and welcome you to Grief, to Growth.
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Thank you, brian, and greetings to your audience, and I hope I live up to that very nice introduction you gave me.
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Oh, I'm absolutely sure that you will.
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I wanna again thank you for being here.
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I wanna tell everybody before we get started, we have a little bit of delay with the satellite.
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Edward lives in a very beautiful area, so it's the satellite reception is a little bit, so we're it might be a little delay, but we'll get through this and we'll try not to just talk over each other, edward, like for you.
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If you could start by.
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I'm sure most of our audience is familiar with Guidepost Magazine.
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I know millions of people read it.
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But for those who are not familiar with Guidepost, please tell us a little bit about the magazine and how you got started there.
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Well, it was founded in 1945 by Dr Norman Vincent Peale, and some of you may recognize that name.
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He wrote the Power of Positive Thinking, which is one of the seminal books of the 20th century for sort of linking self-empowerment with faith in God, sort of a if you believe in yourself and you believe in God, then you can do great things for yourself.
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And Dr Peale actually founded Guidepost Magazine about eight years before he wrote the Power of Positive Thinking.
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I think a lot of his thinking was shaped by the experiences that he discovered in interviewing people for Guidepost Magazine.
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Guidepost Magazine was the original sort of user-generated content at a time when magazines tended to be a little bit up in the.
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You know the audience was out there in the proscenium, you know, beyond the proscenium stage and you spoke to them.
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And Dr Peale had the idea that everyday people from all walks of life, different faiths, you know incredibly diverse gathering of people who tell their personal stories of faith and action and in their everyday lives Not big conversion stories but much smaller stories sometimes about how people overcame problems.
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We found solutions by believing themselves and believing God.
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And that's the story of Guidepost Magazine.
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It grew throughout the years and it reaches millions of people, every issue.
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It has celebrity sometimes, but it has mostly everyday, ordinary people sharing their struggles, their strengths, their hope in their trials.
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That's.
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It's an awesome magazine.
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I know it inspires a lot of people and I know Norman Vincent Peale was known for the power of positive thinking.
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Now your memoir covers a disease that we know of, alzheimer's that people don't recover from.
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So how tell me how this played out as you were going through this experience, with your mother going through Alzheimer's?
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Well, alzheimer's I know.
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Sort of the subject of the topic of your podcast is grief, and in most cases people die relatively suddenly in our lives.
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We lose them.
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Maybe it's expected.
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In Alzheimer's it's kind of a journey of grief.
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For me it was also a journey of faith.
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But you lose that person a little bit every day, every week, every month, as you see them begin to sort of fade away.
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This Alzheimer's that afflicted my mother seems to run in our family.
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On the maternal side of the family she had three sisters and three brothers.
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All three girls, all three daughters died in memory care and one of the three brothers also had Alzheimer's or dementia.
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The other two brothers probably died too soon before they could have shown symptoms, and all of that seems to come from their father.
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My grandfather was the only grandparent I knew when he was way back in the 50s, when I was a little kid, and he was afflicted with dementia.
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They didn't have a name for it, really.
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I mean they just said oh, he's Dodie, he's senile, he's just old.
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And whenever I visited him the thing he would do is he'd bestow a quarter on me.
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So I was very, and then, as the time passed, he'd sometimes forget that he gave me a quarter and he'd give me another one.
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And I'd go over there and he'd say, did I give you your quarter?
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And of course, as the kid that I was, I said, oh, of course not, you didn't give me a quarter.
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So I was loading up on quarters by the end, but I just thought it was a game that he was playing with me.
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I didn't realize the effect of that one little interpersonal exchange I had with him when I was just a little boy would sort of color the way I looked at life later on, in particularly when my mother got sick.
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The very first signs and the very first signs really came from her church.
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She was a really smart woman.
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I mean, she was the daughter of a school teacher.
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She learned how to read before she even went to first grade.
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She was one of these people who did or had two books that's going at any given time.
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Plus she did the Cross, the New York Times Cross, the Red Puzzle and Ink.
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She was a quiz show champion in the 1950s.
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She was really a smart woman and she did a lot of charity work and she was devoted to her church and one of the things she did was a Catholic church, st Owens, in Birmingham, michigan, and she would count the collection basket after Daily Mass and her job was to count it up and fill out a deposit slip and take it to the bank Saved a lot of trouble for so that the pastor didn't have to do that.
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And one of the non-sister, caroline, called us at one point and said your mother is slipping up.
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She's the deposit slips don't add up to the amount of money that she's taking to the bank and it's causing some confusion.
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But I'll double check her for you Because we don't want her to.
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She's very proud and she wants to be of use to her church and to her faith, so we're going to let her keep doing it, but I'm going to double check and go to the bank with her every day and make sure that the deposit slip is correct so we don't have any misunderstandings to the bank.
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And she was also the church librarian.
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And again around that same time, because Sister Caroline called us up and said your mother's having trouble reshuffing the books.
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The Dewey Decimal System is beginning to confuse her and we're going to take her off of that.
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She can still check books in and out at the front desk.
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So it was almost like a strike of fear through me when I started knowing my family history and we started to hearing those things about my mother and I began thinking there's no stopping this and it will go on until it's over, and that was just.
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Almost immediately I felt myself grieving for what I knew would be an inevitable loss, and along with what's.
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Death is one thing, because death is a full stop as far as life on Earth goes.
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But dealing with someone with a dementia like Alzheimer's or any of the related ones, you see them die a little bit, they go.
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You lose that person day by day, by day.
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They know it's a disaggregation of your cognitive abilities.
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It begins to the mind begins to fly apart in slow motion and to see it was incredibly painful.
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But into the journey I also found these moments of hope and beauty that were completely unexpected, which I think sometimes happens even when we are in deep integrity, where we have these bursts of beauty in our memories of our loved one.
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In my mother's case, I found that as all of these things faded away, when I wasn't even sure she knew who I was, though she did, I know that now the two things that seemed to survive the ravages of Alzheimer's were love and faith, and for some reason or other they seemed to survive even the onslaught of cognitive decline.
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And in the end, that was my mother love and faith, and those two things are what gave me such hope at the end.
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The last word my mother ever said to me and she hadn't spoken for a while and I was telling her I knew she was going to die soon and I was telling her I was apologizing for what a bad son I thought I had been and I had been at times very bad.
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So we can talk about that and the only thing she said and it was the last thing she said to me was love.
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That one word, excuse me.
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Yeah, that's beautiful.
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It's beautiful to hear that that survived, even, as you said, the onslaught of the disease.
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I know with Alzheimer's, as I was telling you, I think, before we start recording, I've gone through it with my father-in-law and we're going through it now with my mother-in-law, and there is that anticipatory grief that we don't have with a lot of other things and there's that losing the person.
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It's one thing to lose the body, but to lose that mind and that connection, as, I think, a special kind of grief that we go through as we see our loved one no longer who they were.
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So, as you're going through that, and being that you're the editor of Guidepost Magazine, how was that?
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How did your faith help you to cope with that and this positive outlook?
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How did you maintain that?
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It wasn't always positive.
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I'll tell you that.
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You know to see someone's memories.
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We are made of memories.
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I mean, that's really who we are.
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Everything we are is the function of our memory system.
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You know, it's how cognition functions.
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So to see those memories slip away like that, like watching sailboat disappear slowly into a fog bank, is very difficult, and it was very difficult.
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I should tell you a little bit.
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You asked me how I came to Guidepost Magazine.
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So when I came to Guidepost, I had never heard of it.
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You know, people are always shocked by the fact that.
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You know.
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I had no idea what Guidepost was.
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I thought it was a travel magazine.
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I think it sounds like a travel magazine.
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Maybe I can get a few trips out of this job.
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If you substitute journey for travel, then that's what it's been for me.
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And I came to Guideposts and I was in a very bad state.
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I was, you know, pretty much a bottomed out alcoholic.
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I had lost just about everything.
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You know the most important relationships in my life.
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Everything was gone.
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I was hanging on by a thread, you know, and then for a little time, a little bit before I had been in and out of, I slept in the streets.
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You know, there was a time when I begged for change so I could keep drinking.
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I would pick up cigarette butts and smoke them, so I couldn't afford cigarettes.
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So anyway, I don't know how Guidepost got my resume.
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I was trying to get back on my feet at the time, I have no idea.
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But this recruiter called me and said would you be interested in going to an interview at Guidepost Magazine?
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I said, first of all, who are you?
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I've never heard of you and I don't know how you got my phone number.
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And secondly, what's Guideposts?
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And she said well, you're writing back around me to be of interest to them.
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So I was desperate and penniless and about to lose my apartment or get kicked out of my apartment, and so I went in for the interview and it just.
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It was almost like I almost suddenly knew where I was for the first time in many years.
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That was in the right place.
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And I said to myself I'll stick around for a year.
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I've been going to 12 step meetings at the time and my sponsor said just find a job, any job, hang on to a free year where you can work on your sobriety and you work on your spirituality and your relationship to a higher power, whether you believe in him or not, act as if and just do it to yourself.
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Okay, so Guideposts are like a nice place to spend a year and that was in 1986.
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And I got sober at Guideposts and what kept me there was the beauty of the audience and their stories and what they went through in their lives and big emotions, sometimes loss and grief, depression, people overcoming these things, and they almost like carried me during a time when I needed to be carried.
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The audience did so.
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I tell you this background because when my mother, some years later, when my mother began to suffer the symptoms of dementia and I was, she was in Michigan with my brother and my sister and my sister-in-law, but I was in New York City, manhattan, working at Guideposts and it was I was panic-stricken that I couldn't be there from my mother.
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There's no reason to think that I she would never have wanted me to come back to Michigan to take care of her.
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That would have horrified her because she was so independent.
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But during in the beginning part of that time and I think this has to do with that anticipatory grief, that fear of losing her and knowing that I was going to it was going to be painful.
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I did start drinking again and, you know, and it took me back, not necessarily to the, to the depths that I had been at when I first came to Guideposts, but emotionally and spiritually the depths were the same.
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Maybe not the outside, the loss of apartments and not having a place to live and having no money, that wasn't it.
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But spiritually, you know, I'd lost my contact with God and I began drinking and drugging again for on and off for a couple of years, until I ended up in the detox and I was really forced to confront the fact that I was trying to smother these feelings I was having about my mother Trying to tell myself I was an alcoholic and I drank because I drank.
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That's what alcoholics do.
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And I saw a therapist in this facility and he said let's talk about your mother.
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And I said no, let's not talk about what she's going through.
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You know, it has nothing to do with what I'm going through.
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And he said well, maybe it does, maybe it's not an excuse for drinking and drugging, but it is a trigger.
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And that really began my journey towards hope and faith with my mother's illness, where I really began to accept it, accept that it was going to be painful and that I would go through that.
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And then you know, I realized at that time and you know you hate to say this about something as painful as grief and loss but in my life the only time I've really had significant spiritual and emotional growth is during the difficult times, during the struggles, when I'm happy and everything's fine and I just feel wonderful.
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That's great.
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But I don't experience all the spiritual growth and personal, you know, progress in those moments.
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I've always found it's in the moments and the struggles and the pain which are just part of life and you can't get by them.
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It's the place where you learn so much about yourself and what I learned in my mother's illness and the prospect of losing her was that I could survive.
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I could survive that.
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That's wonderful.
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Thank you for sharing that.
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And what I think it's been my experience too is that I think it's the human design that when we're going through what we call good times, when things are fine, we don't experience that growth.
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It's when we're tested, when we're tried, when we're put through that trial by fire, that we realize how strong we are and in fact, I believe we've become even stronger.
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I don't think that the pain of this world is a mistake.
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I don't think it's a bug, I think it's a feature, I think it's something that you know, and I'm sure, being the editor in chief of Gipus all those years.
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When people are writing their stories of triumph, they're overcoming something right.
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I mean, those are the people, those are the stories that you're publishing.
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They're always.
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These are stories of overcoming, and it's fascinating to see that it can be overcoming something as small as learning to fit in at a new job, you know, and maybe facing your insecurities about that, and or it could be facing the loss of a child or facing the loss of a spouse or a job and overcoming that.
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The interesting thing was if someone's just trying to fit in at a new job and getting comfortable in their cubicle or if it's someone trying to face a life crisis, the tools are the same.
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You know the tools are.
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You know of.
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You know pushing down denial and letting go and just believing that there is a path for you to go forward.
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So many times, you know, if I'm in Gipus stories and in life in general, we think there's no way, for you know, when we're trapped in those moments where life is really testing us I like that word you use testing and we think there's no path forward, you know we find that path and that path is an inspiration to others, and I think one of the most important things about Gipus stories is the people who tell them or want to help other people.
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It's not just you know.
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Here's what happened to me and the guy post-audi has.
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When we talk to them we talk to them a lot always say, oh boy, I can identify.
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You know, I can identify with what that person went through.
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Maybe I never went through anything like it, but I've gone through things that are that remind me of that struggle and I can understand that there's light on the other side of that struggle.
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You mentioned something I think it's very important that feeling that there's no path forward when we go through the worst types of grief.
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I think that's the one thing we have in common.
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We feel like this is the one I'm not going to be able to survive, this is the one I'm not going to be able to overcome, and we get to, we feel like is the end of the road.
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And I'm wondering did it feel like that for you when your mother got this diagnosis?
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Later, you know, it sometimes felt like I was falling.
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It felt like I was just falling through space and I didn't know where I would land if I was just behind the landing.
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You know, and it was my mother's strength that persisted throughout her disease, and the people who had in your audience who have dealt with Alzheimer's or dementia patient and I know there are many of them, but it's like millions and millions of families in this country, you know know that there is always a core of someone inside that person who seems so lost to us.
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You know, I found the most important thing with my mother was to be present, to live in the present.
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This disease told me that I had to meet my mother in the present because that's all she had.
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She had the moment, the pinhole in time that she lived in, because the past was being wiped out for her and she had no concept of the future.
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So I had to find how to meet her in that moment and sometimes it was just being with her, sometimes in the middle.
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You know our tendencies when our loved ones begin to talk in a way that we think is irrational or unrealistic, like my mother would say that she had a conversation with someone at that point and I'd say, oh, and it would be someone who's been dead for years.
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My tendency as a son is to say no, no, you didn't talk to that person.
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That person, don't you realize that?
00:22:26.115 --> 00:22:26.657
Don't you remember?
00:22:26.657 --> 00:22:31.398
They died 15 years ago and I realized that that was the wrong thing to say.
00:22:31.398 --> 00:22:39.040
Totally the right thing to say it took me a while to learn was oh well, how was that conversation?
00:22:39.040 --> 00:22:40.104
What did just talk about?
00:22:40.104 --> 00:22:52.150
You know, and you know, in that moment I was being able to meet her where she was and sort of trying to drag her back to where I was, which was, you know, someone without dementia.
00:22:53.854 --> 00:23:02.589
And I realized that, you know, in the process we went through this process, this slow process of grief, as I lost her, and I lost her every day or every week, every month.
00:23:02.589 --> 00:23:05.700
You know a little bit more than you know.
00:23:05.700 --> 00:23:21.228
If I stayed in the present, if I was there just with her, that sense of grief would lift, because I couldn't love my mother, if I was grieving her while she was still alive, because grief will block out that.
00:23:21.228 --> 00:23:21.829
We think.
00:23:21.829 --> 00:23:27.672
You know I'm going to say something that I said before and written about, and people sometimes don't agree.
00:23:27.711 --> 00:23:32.942
But grief can be a very selfish thing, you know, because it is.
00:23:32.942 --> 00:23:38.561
It's so self centered, you know, and it is a universal feeling that goes back.
00:23:38.561 --> 00:23:52.163
I mean, you can, you can find cave paintings and ancient hieroglyphs describing grief, it's part, it's very fundamental to the human condition and even other, you know, higher order of mammals seem to suffer.
00:23:52.163 --> 00:23:54.195
You know the period of grief.
00:23:54.195 --> 00:24:05.222
It's important to us to know that people matter to us so much that we will suffer and when they die they leave us when they go on.
00:24:05.303 --> 00:24:20.267
But grief can also be a blocker, you know, and I, if I wanted to be there for my mother as she was dying, you know I had to push through that, that grief, that sense of, you know, I've lost my mom.
00:24:20.267 --> 00:24:29.462
I've lost my mom and just say no, she's still here and there's a way to reach out, and sometimes that's just holding a hand, sometimes just sitting there.
00:24:29.462 --> 00:24:34.965
You know, during the last of my mother's time I spent a lot of time just sitting with her.
00:24:34.965 --> 00:24:45.221
You know, we didn't have to say anything, I just knew my presence meant something and it's certainly her presence on something to me, but it was all about being in the moment.
00:24:45.221 --> 00:24:50.980
So when I say grief is selfish for me.
00:24:50.980 --> 00:24:54.471
Sometimes it has been because it's so much about me.
00:24:54.471 --> 00:25:14.980
I mean, that's grief is your feelings, your emotions that you're experiencing, and I always, you know, I remind myself to be cautious about that that it's, that it is a process on one that we have to push ourselves through, and sometimes we get stuck.
00:25:17.479 --> 00:25:18.181
Yeah, I think that was.
00:25:18.181 --> 00:25:21.728
That was very, very well said, and I understand what you're saying.
00:25:21.728 --> 00:25:25.363
You know, I tell people there are I think there are two sides to grief.
00:25:25.363 --> 00:25:46.519
We grieve for ourselves, what we're losing, and we supposedly grieve for what our loved one has lost, especially in the case of death, when someone, when someone transitions to the next world, and I tell people, don't grieve for them, because they're okay, the people that are making that transition to the next world, they're fine.
00:25:46.519 --> 00:25:48.804
And I was just.
00:25:48.924 --> 00:26:08.461
This happens to be, I guess, dementia day, because I interviewed someone earlier this morning who lost her mother to another form of dementia and we were talking about one of the lessons that we get from this is being in the moment, you know, and so that's all we have with people with, with with these diseases, with Alzheimer's or other forms of dementia.
00:26:08.461 --> 00:26:09.945
They, they don't have the past.
00:26:09.945 --> 00:26:15.057
We can't go back to that, but we can learn to be in the moment, which is something that we can all use in our lives.
00:26:15.057 --> 00:26:16.663
So they're, they're here, that's.
00:26:16.663 --> 00:26:17.986
I think it teaches us something.
00:26:19.395 --> 00:26:25.047
Sure, it teaches us the power of the present, which is so important.
00:26:25.047 --> 00:26:26.957
And you know, I live in New York City.
00:26:26.957 --> 00:26:32.194
I live down the street from the New York headquarters of the Franciscans.
00:26:32.194 --> 00:26:38.018
They have a beautiful church, the Church of St Francis, and I would walk my dogs by them for a long time, for many years.
00:26:38.018 --> 00:26:45.146
I love the fires that come out and bless my dogs, you know, and that was there's always so wonderful to bring your dog for a blessing.
00:26:47.594 --> 00:26:55.740
But I would talk to them about my mother, and especially after she died, and this one fire said to me look, she's in a better place.
00:26:55.740 --> 00:27:07.380
Think of the suffering that has ended, think of how, you know, she was a woman of tremendous faith and he's moved on to something that is more wonderful than you can possibly imagine.
00:27:07.380 --> 00:27:18.478
So, you know, if you're grieving grief for yourself, surely, but don't pray for her because she's gone to something better and you need to acknowledge that and let go.
00:27:18.478 --> 00:27:20.782
You know, because you can't keep her here.
00:27:20.782 --> 00:27:32.869
And in your grief you're sort of trapping your mother, not in any, you know, ghostlike way, but you're sort of emotionally trapping your mother here when she's gone on.
00:27:32.869 --> 00:27:46.086
You know, I know the pain that you're in, but you have to at least celebrate that she's with God, she's in a better place, where she needs to be, and you know that helped me a lot.
00:27:46.086 --> 00:27:52.660
That kept me from slipping over the edge all the time and just sort of sitting down and saying I can't, don't know what to do with myself.
00:27:54.076 --> 00:27:56.403
Yeah, I think it's both things at once.
00:27:56.403 --> 00:28:01.056
The grief is a normal process that we have to go through.
00:28:01.056 --> 00:28:03.580
It's it is.
00:28:03.580 --> 00:28:12.125
It's that love, the honors that person and it says how important that person is, and that perceived loss, that that we feel like we've lost them.
00:28:12.125 --> 00:28:13.087
So we can't.