Barby Ingle is a best-selling author, reality personality, and lives with multiple rare and chronic diseases; reflex sympathetic dystrophy(RSD), migralepsy, PALB2-var, endometriosis, and other pain disorders. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics.
Barby knows grief from the loss of loved ones in her life as well, both her parents, and her grandparents have passed on.
Barby was living her dream. She trained and performed cheerleading, dance, and gymnastics starting at age 4 through college. Straight out of college. Barby started a cheer/dance training company. A year later she was hired by Washington State University as the head spirit program coach.
Barby has been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, she developed Reflex Sympathetic Dystrophy (RSD), a progressive neuro-autoimmune condition that affects multiple systems in the body and needs to be treated early so that disability does not take over and TMJ. Barby lost her physical abilities was bedbound for years. Barby used a wheelchair to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment.
As she searches for a cure, she has become her own best advocate and work sharing the information so that others do not have the same life struggles that I have. Even after seeing over 100 healthcare professionals, having major surgeries she didn’t need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – Barby did not give up or give in!
In this interview, Barby teaches how we can also become our own best advocates.
Her blog, reality shows, and media appearances are used as a platform to help her become an e-Patient advocate, and she presents at healthcare conferences, speaking publicly, sharing her story, educating and advocating for patients across the globe.
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